For family members

We face many doubts and insecurities when our daughter is diagnosed with Rokitansky Syndrome. The search for answers to so many questions becomes just as intense as our concern for how our daughter will cope with this journey. With this in mind, we share updated information about the syndrome, available treatment options, possible complications, and issues related to sexuality and motherhood in the Rokitansky Syndrome section.

In addition, we are present on various communication channels to share updated and important content for everyone involved in this journey.

As a way of welcoming you, we have prepared a Guide for Family Members, specially made for mothers and fathers, who find themselves face-to-face with the challenge of the syndrome diagnosis, with clear and direct information to help them in this process.

We are committed to going through all of this with you, bringing information, support, and comfort.